The neurosurgeons visited us a few times to check on Elise and said that she is doing very well and her shunt is working properly. Her head circumference has come down a couple centimeters, which is what they would expect at this stage. It will continue to decrease in size but she will also "grow into her head" with time.
Andy and I each attempted to bottle feed Elise today. She was not terribly interested in the bottle which they say is normal for a preemie and is probably unrelated to her condition. She takes the rest of the milk through her feeding tube. We will keep working on the feedings daily and I have faith she will get the hang of it soon enough!
During the most difficult time of my pregnancy when we received Elise's diagnosis, my church was reading a book together called Draw the Circle: The 40 Day Prayer Challenge by Mark Batterson. I cannot even put into words how helpful this book was during our journey. There were numerous times where I would save an excerpt from the book because it was so profound and applicable to what we were facing. One day, after Andy and I had recently decided to name her Elise because of it's meaning, I came across this in my reading (see below). I saved a picture of it with Elise's name and sent it to Andy. We knew that we were going to have to completely dedicate our sweet girl to God and that this was confirmation that she was in His hands.
I didn't know that, but I am just not surprised. God blessed you with so many signs along the way that he has a plan for Elise.
ReplyDeleteHe really did.
DeleteMy little cousin,
ReplyDeleteFirst, I want to congratulate you for the precious little member, Elise, who joined you recently. I am happy and exited for you; I wish I was there to see you guys more often. About this blog, I read it, and I was blessed by your faith! You have inspired me. I can't write you anything uplifting beside copying and pasting what you have written in this blog. I can only ask our lord to shower you with his love and fill you with his grace since all we have is our savior, Jesus Christ, whom without him life was meaningless.
Please, do keep us posted of Elise and her condition as we keep her in our prayer so the glory of our God is heard and seen.
Love you in East, your cousin from West
Samuel Isaiah
"And all things, whatsoever ye shall ask in prayer, believing, ye shall receive." (Matthew 21:22 KJV)
Thank you so much for these encouraging words, Sam. Andy and I really appreciate everything you've said and your prayers for our baby girl. We love and miss you!
DeleteI couldn't find the words earlier, but reading your cousin's post, he said exactly what I felt while reading this blog: "I was blessed by your faith." I too was blessed by yours and Andy's faith. I'm so happy to hear how she's coming along.
ReplyDeleteMonica, Thank You for sharing Elise with us, I love the way her name was chosen and the meaning of it. We have prayed for her and now we get to meet her through your blog. We will continue to pray for her and for you and Andy...God Bless....Alice Hudson
ReplyDeleteThank you, Sis. Hudson. We know your family has been praying from the very beginning and we are so grateful.
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